You have the disease - The disease does NOT have you!
We are a 501c(3) Foundation and we created this website to make you aware of the commitment we made to the Cystic Fibrosis Foundation to raise awareness about this disease that has greatly affected our family, friends and our lives. As you may know, this team has been personally affected by CF. Our friend and family member, Niki Feezle, fought a hard fight with CF. Niki passed away July 11, 2010 – she was 24 years young.
Niki was a fighter from the day she was born! The doctors told her parents that she would not see her 1st birthday. In the first 18 months of her life she endured 25 major hospital stays. One of the comments her mom made during one of these stays we should all take to heart:
This just isn’t fair, but as we all know, life isn’t fair. One thing that I did learn from all this is to never give up hope. It is the one thing that no one can take away from you. I lost my little girl three times that day but she fought back! Even though she was down and out, she kept fighting!
Niki lived like those words her mom told her:
You have the disease – the disease does not have you!
Niki lived her life to the fullest. Niki also touched the lives of everyone who knew her!